Federal Service for Health Control: Medicines in the Programme “Seven Nosologies” are provided regardless of patients’ having disabilities and keeping rights for benefits
September 12, 2008
Some time ago, we told our readers of the paradox with regard to providing Russian PwMS with drugs which modulate the course of their disease. On the one hand, the medical profession claims PwMS start modulating treatment as soon as possible, i.e. shortly after their diagnosis, but on the other hand, Russian PwMS were able to start the therapy no sooner than their first disabilities came up and were confirmed. Thus, the preventive power of the drugs, which is especially valuable in MS, was formally cut off.
However, this has been eliminated. This year, PwMS and those suffering from the other six nosologies, identified as severe and rare and highly expensive for management, can receive an adequate treatment right away after they are diagnosed without awaiting their disabilities development.
To get rid of any ambiguity in this vital issue, Elena Telnova, Deputy Head of the Federal Service for Health Control in the RF (ROSZDRAVNADZOR) explained the procedure of provision of pharmaceuticals in the Programme of providing patients with rare chronic diseases (“Seven Nosologies”) with high-priced medicines. The explication was given in reply to the request of the All-Russian Society of people with hemophilia.
In particular, the letter reads: “According to Article 56.2 of the Federal Law #238-FZ of December 19, 2006, purchases of pharmaceuticals to treat hemophilia, mucoviscidosis, pituitary nanism, Gaucher's disease, myeloleukemia, multiple sclerosis, as well as conditions after organ/tissue transplantations are carried out in accordance with the data in the Federal registers for patients with the above-mentioned nosologies.
Centrally purchased pharmaceuticals shall be provided to patients regardless of whether they have their disabilities formally confirmed, as well as to patients who have refused the state social assistance in the form of social services for 2008… Therefore, centrally purchased pharmaceuticals may be released to patients included in the Federal registers on the mentioned nosologies regardless of whether they keep their right to get the state social assistance in 2008.” (Translator’s note: before, all medicines, those for MS included, were released to patients for free only on the condition of their keeping this right to get the state social assistance, which reduced their disability benefits)
(AMI-TASS)
14/02/2008
MOSCOW (MN, RIA Novosti) - Moscow authorities intend to adapt children's education facilities to the needs of disabled students within the next four years, Olga Larionova, the head of Moscow Education department has announced.
"We plan to provide all the necessary equipment for children at specialist educational establishments within four years if state finances permit," she said. Larionova said also that 177 establishments of general education would be equipped for the purpose this year. The equipment includes special entrances, exits and elevators for paraplegic children, as well as special toilets.
According to sources, at least three additional education establishments in every district are to receive the appropriate equipment. The estimated budget is 50 million rubles.
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