ОБЩЕРОССИЙСКАЯ ОБЩЕСТВЕННАЯ ОРГАНИЗАЦИЯ ИНВАЛИДОВ-БОЛЬНЫХ РАССЕЯННЫМ СКЛЕРОЗОМ

June 11 – MS Day

MS Day in Regions of Russia

Regional branches of the All-Russian MS Society held the action ’11 June – Multiple Sclerosis Day’. The key goal of the action was to raise awareness about MS in their communities as well as to provide PwMS with emotional and, sometimes, material support.

Thus, volunteers, students and members of the Society branches held the action in the cities of Krasnodar, Stavropol, Rostov, and Volgograd of the South Federal District. They would spread bands with information about MS on them in busy parts, especially near, and in, health centres. In the Kalmyk Republic, members of a religious society made up packages with grocery products and distributed them throughout the republic.

Members of the Barnaul regional branch of the Society approached sponsors to make 500 copies of the leaflet with brief information about MS, its tendencies and consequences, which they mailed to organizations and enterprises with a direct-mail service. In Ulyanovsk, they held Round Tables and meetings within the frames of the action. One of the topics for discussion was ‘Social partnership. Human health as the concern of the state and NGO’. This function was held at the Oblast Legislative Assembly. Also, the Department of Social Protection of the Population held another Round Table with the participation of President of the All-Russian MS Society Yan Vlasov. On the streets of Ulyanovsk, volunteers managed to hand out 100 white bands within the frames of the action, meanwhile 200 such bands were handed out in the city of Omsk.

One of the most popular TV channels in the Kirov oblast told about the All-Russian MS Society as well as about its branch working in the Kirov oblast. The TV channel broadcasted once again the information that there are pharmaceuticals to help PwMS live an active life.

In the Chuvash Republic, they gave emphasis to drawing the community’s attention to MS through posting informational leaflets. Besides, the volunteering participants of the action could answer questions of passers-by. On summing up the event, they offered to hold such an action again in future.

One of the ‘MS Day’ functions held in Samara on June 11 was the Creative Competition-Festival of the Disabled ‘We Stand Together’ organized by the Ministry of Health and Social Development. The festival was a demonstrative example of how people with disabilities can socially adapt, raising the tolerance in society towards disabled persons, and bringing various structures to solve disability problems.

Quite a few regional branches implemented the action for the first time. However, many people in Russia were able to get to know or learn more about MS on this day, while the MS Society branches proper had the action as their first and important experience of this kind of work.

Russia acceded to UN Convention on the Rights of Persons with Disabilities

September 25, 2008

UN, September 25 - /Ksenia Kaminskaya, special correspondent, ITAR-TASS/. The day before, Foreign Minister Sergei Lavrov on behalf of Russia signed the UN Convention on the Rights of Persons with Disabilities. At the Organization’s Headquarters, he also gave for keeping the charter of Russia’s ratification of the Optional Protocol to the Convention on the Rights of the Child, which has to do with involvement of children in armed conflicts.

‘The Convention on the Rights of Persons with Disabilities is the first document in this century that is universally dedicated to the human rights, Lavrov said to reporters. People in Russia are increasingly keen to observe the rights of persons with disabilities, and there is much for us to do in this perspective. There is a Law passed in Russia in 1995 about the rights of people with disabilities, the Federal Programme about support for people with disabilities for 2006-2010.‘

At the same time, the minister remarked that ‘it is crucial now to transfer these tools onto practical level.’ ‘As we accede to the Convention, it will promote fulfillment of all our plans in good faith as well as international obligations added today,’ Lavrov confirmed. ‘The Convention on the Rights of Persons with Disabilities was adopted by the UN General Assembly in 2006; 36 states have ratified it.

‘Russian accession to the Optional Protocol to the Convention on the Rights of the Child has a special significance in the stream of our politics with regards to defending the rights of children,’ went on Lavrov. This document “specifies the measures that are necessary for all nations to employ in order to avoid using children in armed conflicts,” the head of the Russian diplomatic office explained. ‘These actions stand for Russia’s support for the international cooperation in the area of human rights, and it concurrently means we incur additional obligations as to implementing the agreements,’ the minister added.

The main objective of the Protocol is to prevent involvement of children in armed conflicts. 122 nations have acceded to the document. In accordance with the order of the Russian President and on behalf of Russia, the Protocol was signed in 2001.

www.ami-tass.ru

Additional financial support for pharmaceutical provision needs

Tatiana Golikova: In 2009, 12.2 billion rubles will be appropriated additionally for pharmaceutical provision needs

07.10.2008

There are budgetary assignations up to 12.2 billion rubles (335 million euros) for 2009 to supplement the state’s pharmaceutical provision, Tatiana Golikova, Head of the Ministry of Health and Social Development, was quoted as saying in her speech at the seminar meeting organized by the United Russia party in Moscow, October 7.

www.edinros.ru

WHEELCHAIR USER VS AIR COMPANY

Wheelchair user gains suit at law versus an airway company 

October 17, 2008, Moscow

The court penalized the airway company ‘Sibir’ (S7) in paying off 50,000 rubles (1,400 euro) to Natalia Prisetskaya on the charge of rejecting to take Ms Prisetskaya on board the aircraft #881 ‘Moscow-Vladikavkaz’ on June 30, 2008. As Ms Prisetskaya said in an interview to the ASI agency, the financial component of the suit does not matter much. What really counts is that the court determined those who are right and those guilty and thereby presented a precedent at law, which will help other disabled persons to protect their rights.

www.asi.org.ru

 

24/10/2008 | Moscow News №42 2008  

Disabled woman wins lawsuit against airline

A disabled Russian woman has won a lawsuit against an airline company that forbade her taking her wheelchair inside of the aircraft cabin. The airline, which was slapped with a fine, said it would appeal the verdict. Meanwhile, another disabled person has accused the same airline of violating her rights in a similar incident.

The court ruling was announced on Friday, October 17. The Cheremushki District Court of Moscow ruled in favor of Moscow resident Natalya Prisetskaya against the S7 airlines company as "the airline had no right to ban the woman from flying on the grounds that there was no one accompanying her." The court also ordered the airline to pay the plaintiff 50,000 rubles (about $2,000) in moral damages - 20 times less than the sum that was demanded, but   Prisetskaya said she was satisfied with the decision.

The incident that prompted the court hearing took place in summer this year. Natalya Prisetskaya, an activist of the "Iniziativa" public organization that protects the rights of disabled persons, was traveling to the city of Vladikavkaz from airport Domodedovo in Moscow. Prisetskaya told reporters that she had planned the trip to meet the people who suffered in past wars and military conflicts and "had a lot of important appointments in the region."

A taxi driver, who brought Prisetskaya to the airport helped deliver her luggage to the check-in stand, and left. The woman registered her ticket herself and then visited the airport doctor who cleared her for the flight as required by the airport rules for all people using wheelchairs. Airport staff then seated Prisetskaya in a special narrow wheelchair and sent her own into the luggage compartment of the plane.

When Prisetskaya approached the aircraft, one of the airport workers went up into the cabin and told a stewardess to prepare a place for a wheelchair-bound passenger. The stewardess, who refused to give her name or to speak with Prisetskaya in person, said that she would not allow a disabled person inside of the plane without an accompanying person. After a short conversation, Prisetskaya's luggage was unloaded and the plane left without her. Speaking to press near the court building on Friday, Prisetskaya said that she felt very humiliated and helpless while stranded on a runway in a wheelchair in which she could not even move without help. "I am an adult, I can make an estimation of my health state without shifting the responsibility onto other people," she said.

Interestingly, Prisetskaya managed to fly to Vladikavkaz later the same day - her organization booked her another ticket with a different airline and she left from the Vnukovo airport without any obstruction. The woman told the press after the court session that she had flied several more times since the summer and never had any problems with flight attendants.

However, she motivated the lawsuit against the S7 by her fear of getting a new refusal which made the travel very complicated. She demanded that S7 is fined 500 000 rubles and also pays her 1 million rubles in moral damages.

The court ruled in favor of the plaintiff but significantly reduced the amount of the fine and compensation. S7 was told to pay a fine of 25 thousand rubles and to compensate 50 thousand to Prisetskaya. The plaintiff said she was satisfied with the decision and very happy as she was concerned with the principle rather than material part of the problem.

A representative of the airline company said that they regretted that the incident had taken place, but insisted that they acted completely within the Federal Aviation Rules and were concerned by the passengers' safety. On Monday the airline announced that it would appeal the court ruling. 

On Tuesday, another disabled Russian said that her rights were violated by the S7 company. The Echo Moskvy radio quoted Tatyana Sedykh as saying that a stewardess took her crutch and walking cane and put them into the luggage compartment on a flight from Khabarovsk to Moscow. The woman had serious problems with walking inside of the cabin and had to spend a lot of time waiting for the airline staff to find her crutch after the arrival. The woman said she had not yet decided whether she would press charges. 

By Kirill Bessonov

Samara MS society in the Book of Honour!

30 November, 2008

The All-Russian Book of Honour is complied with the help of authorities of different levels. Organizations, enterprises and companies, which have contributed in the social and economic development of the constituent territory, the improvement of the branch efficiency and the increase of the [federal] budget and social efficiency, are entered in the Book of Honour. This happens only at the suggestion of authority executive bodies. The Book of Honour aims at distinguishing the best organizations in their regions that work to make Russia successful and prosperous.

Last Saturday, we learned that the Samara regional MS society had entered the All-Russian Book of Honour. As due, the Samara Municipal District government had suggested the MS society for the Book. This means that the business reputation of the Samara MS society is acknowledged in the government. The Book of Honour will shortly be distributed in hard version throughout Russia among authority bodies, voluntary organizations, media agencies. Meanwhile the book can be accessed online at www.kniga-pocheta.ru.

The Samara MS society has all rights to be proud of such an achievement. This will certainly help the society in its further activities and development, ensure more support and respect on the part of government bodies, business groups and non-profit organizations.

Pavel Zlobin, vice-president, All-Russian MS Society