ОБЩЕРОССИЙСКАЯ ОБЩЕСТВЕННАЯ ОРГАНИЗАЦИЯ ИНВАЛИДОВ-БОЛЬНЫХ РАССЕЯННЫМ СКЛЕРОЗОМ

The potential of nonprofit organizations in Russia is hardly used

12 November 2009

Nonprofit organizations in Russia are basically unable to influence the development of draft laws. That was the argument of Sergei Kolesnikov, the Deputy Chair of the State Duma Committee on Health Protection, at the Round Table on issues of normative legal supporting for nonprofit organizations to participate in making the government policy in healthcare.

‘There are no system-based activities done together with nonprofit organizations in our country as the practice is overseas. Nonprofit organizations have not been very successful to shape the activities of executive authorities and lawmaking bodies recently,’ said the deputy, who explained that he meant not only the Ministry of Health and Social Development but also most Federal ministries. He made a point of that a range of draft laws are discussed and developed at the moment, and nonprofit organizations have no impact on the final version of these documents. For instance, he suggested taking the new law on pharmaceuticals turnover, the draft laws on settling differences between physicians and pharmaceutical companies, on orphan drugs, rare diseases.

Yelena Nikolayeva, the Chair of the Trustees Board of the nonprofit foundation ‘National foundation for healthcare development’, informed that Russia is significantly behind of the USA and some other developed countries in this respect, in which the issues of disease prevention, making healthy lifestyle, the quality of life of patients including cancer patients, are predominantly dealt with by nonprofit organizations. She named the causes for the situation being not only unsatisfactory federal laws that restrict nonprofits’ activities, but also the low professionalism of nonprofit organizations themselves. Nevertheless, she recognized that health professional communities in Russia do not practically participate in developing health standards, and she suggested establishing Expert Councils that would include leading professionals in the area. ‘It’s necessary to make a system, which would have the professional community to take part in developing standards without fail. As well as to ensure that no one document without their approval could be accepted by the Collegium of Ministry, no single document be signed by the minister, so that we eliminate the problem of approving standards without health professionals community’s participation. It’s quite easy to do, and it is merely a matter of processing the flow of documents’, Yelena Nikolayeva stated.

(www.pharmvestnik.ru)
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